Sunday Night Update (10/9/16)

Job is getting back to his cheerful little self! He just loves interacting with his brothers and sitting up, watching everyone and playing with his toys.

But (did you hear that coming?) his sats (even on oxygen!) are not adequate. Post-Glenn he should sat in the mid 80s. He's in the high 70s.

Time might be the answer. That's certainly what we're all hoping! We know Job is so slow to respond. Maybe his heart and lungs are still gaining strength.

We put him back on spirnolactone, one of his diuretics, to work on his fluid balance because it is true that his sats have declined this week as he's become more fluid positive. Whether or not there's a correlation remains to be seen.

But it seems increasingly likely that we're headed for a cardiac cath early to mid next week if we don't see improvement within the next 24-48 hours.

I guess I'm glad we're at the hospital for a good week anyway for his opiate wean (which is going surprisingly well! but very slow) because it feels like we have plenty of time since we'd be here anyway, even if he was satting at 85.

Buuuttt it's certainly disappointing as we were so hopeful for the Glenn to be more immediately effective.

I'm trying not to be pessimistic... but also trying to be realistic. I would love for Job to suddenly pull his sats up! But I want to be prepared if that doesn't happen without additional intervention.

It does help seeing Job's happy smiles and I'm thankful that we're seeing our baby return to us, gradual as it may be.