We also had another set of ultrasounds on his left arm (to assess his clots from his central line placed during transplant) and his clots have resolved enough to get off of his lovenox injections! Hooray! He's back on aspirin, as he will be for life, but that's a simple half a tablet I grind and sneak into a beverage.
Overall, he's doing pretty well! We seem to be reaching that point where he's recovered from the trauma of surgery and now able to regain strength to get back to pre-transplant baselines, even taking in the drastic decompensation of July/August/September.
We are in the process of potentially enrolling him in our school district's developmental preschool, but are still considering the "pros/cons" list of such a big decision.
Physically, Job is doing really well. We're so grateful! But it seems that the more stable he gets, the more the rest of us fall apart. We're trying to work through the trauma of the last three years as we have been so focused on Job just surviving. One of the big boys is particularly struggling with a great deal of emotional pain and anxiety and so we're doing our best to love him through his big emotions, which is probably a helpful way to force us to talk about all of these hard things. I don't think I've cried this much since when we were interstage (in between the Norwood and Glenn)!
The healthier Job gets, the more clearly we see how very very sick he was and how very very close we were to losing him.
Our next big issue to confront is Job's (lack of) verbal communication! It's exciting to now have the opportunity to be proactive about aspects of his health and development instead of "just" reactive.
