Job's October biopsy was cancelled because we were concerned he had a cold as his cough changed and his lungs were wet. He might have!
But his gel injections clearly expired as well. So all month we've been going to various appointments to get a surgery slot for new gel injections. He's actually in a pretty unsafe place swallow-wise. Sustainable for a little bit just because his heart is so stable, but they're working to get a surgery time asap. We're hoping it can tag on to the same hospitalization for his annual heart biopsy (re)scheduled for November 19th.
We don't anticipate rejection but since we now go THREE months between cardiology appointments my anxiety creeps higher and higher the longer we go.
Job is really thriving developmentally and we're so proud of the strides he has made. We're doing PT and SLP via Zoom, which isn't ideal but is working but holding off on preschool for now until we get his swallow figured out.
Here's a picture of him in his Marshall (from Paw Patrol) costume (and another with his beloved brothers):
