Job has been tolerating his narcotics weens pretty well, alternating clonadine and dilaudid weens every other day. So far he has yet to experience his harsh withdrawals but I expect that will happen soon when we get to lower doses.
He is satting in the 80s even when upset. IN THE 80s!!!! And he's down to 5lpm, 35% FiO2 on his CPAP. It's amazing. I'm still in shock. He hasn't held on to sats in the 80s since early July.
The plan is to pull his PICC line out of his heart today, essentially making it just an IV line instead of a central line. I want it gone asap because I am now so nervous about him clotting. But it has been really nice to have the access for blood draws instead of pokes each time. With this we'll switch to lovenox injections instead of the heparin drip. They're still having a hard time getting his levels stable so he'll keep the line until they are able to get his dosage stable because until then he needs blood draws every 4-6 hours to check levels.
I'm starting to let myself feel hopeful again. But I'm scared to too, because historically every we start to get excited about his progress is when something else goes wrong (and for the last 5 weeks, the new bad news always hits Monday afternoon).
Life with Job is a roller coaster of emotions! But we'll never be bored?
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