As we were waiting for one of the several providers to come in to see us, I snapped this photo of him playing with his feet. We've been working on developing this skill for the last week and a half with several exercises from Job's wonderful physical therapist, but this was the first time I'd ever seen Job do it on his own!!
Job is quite behind on his physical developmental milestones and gross motor skills, scoring around 3 months of age (though he's 6 months old). Perhaps especially because of this, the team of therapists yesterday was quite surprised and pleased with his social and emotional responsiveness scores, which were much more on target for his age.
Job's sats aren't really improving and we're starting to get nervous about what this could mean. It's probably not helpful to even think about right now because he is still allowed more time to get them up, but it's hard to fight the temptation to anxiously worry about his sats and all of the potenial reasons he's satting this low compared to where we want him to be (and where he needs to be to get off oxygen).
If it weren't for his inadequate sats we'd probably feel a much greater sense of relief to be post-Glenn and able to switch our focus more fully to therapy. Right now it feels like we're in an awkward waiting phase.
Honestly, in some respects I don't know if we ever will be out of a waiting stage. Isn't that what life on earth is? But with his diagnosis, Job's life will always be particularly fragile and we will likely have many complications and scares. Sometimes I forget that, especially as he is improving and, it seems, entering a more stable stage of life. I suppose we will eventually find a balance!
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