Job is finally asleep!
The head of the transplant team came by and told me he "couldn't be more pleased" with how Job is responding to his immunosuppressants - he's already starting to show stable levels - and that his heart looked really really good on echo this morning.
Next is getting Job's bowels moving because he's so gassy and constipated that he's really uncomfortable.
And the next thing that needs to come out is his chest tube because that will make him feel so much more comfortable and allow me to hold him.
3:00pm update:
Job is consolable but can't settle down long term and take a good nap.
He got his pacing wires out!! He's starting to look naked!
1:00pm update:
Tube is out! Satting 98 with no increased work of breathing.
Calming down but still upset and breath holding sometimes.
Today will be all about making sure he can stay extubated.
10:50am update:
Extubation is set for noon!
His Extubation Readiness Trial (ERT)s yesterday and this morning went well but Job has a plicated diaphragm, compromised lung vessels (because of 2.5 years of oxygen depravation), and pulmonary AVMs working against him as well as the fact that extubation necessitates cutting his narcotics in half so he wakes up to cough and breathe on his own. At two years old this is going to be confusing and scary and infuriating.
Hi-flow is the machine to the right and his vent settings are to the right:
8:30am update:
Boring night = great night!
I sleep so well here at the hospital. I think I'm just really tired when I lay down?
And then I sit up and see these glorious fall colors out my window:
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