Job is now completely off of milrinone, which is the last med he needed to wean off of in order to move down to the floor. No more IV meds!! Woo hoo!
SLP came by and officially cleared Job to now eat purees. Just 1oz at a time, three times a day. Job's work of breathing definitely increases when he eats, so we have to go slowly, giving little bites. But he couldn't be more thrilled.
PT and OT came by and I gave them Job's medical history and therapy history and some of my concerns and goals for him. They will alternate days from now on until we discharge. Even though I cognitively understand that Job just came through a major trauma, the fact that my previously active toddler can't even sit up on his own yet two whole weeks later is rather hard emotionally. Actually, everything is still hard emotionally despite how well Job is doing.
He's starting a new med because his blood pressures are too high. He's stable on his anticoagulants but not on his immunosuppression meds.
His lungs are clearing up and he's coughing less and he's down to only 2 LPM of 100% O2, so no positive pressure from hi-flo, just the equivilent of wall oxygen (though through the hi-flo machine in case we need to go back on hi-flo). He only pulled out his NG tube once today, so we only had to endure one traumatic reinsertion.
It seems like every bit of his body is marked up in some way, from some needle or scalpel or pressure wound or adhesive or infiltration. The back of his head now has two bald spots, one of which looks red and sore, so we added those on to his list of skin areas to monitor.
He got two good naps today, which were sorely needed (in addition to the good night of sleep). Job has been so very sleep deprived because he just can't get comfortable.
7:00am update:
Last night Job slept better than he has all week (since extubation and sedation wean and coughing began)! So he was pretty interactive this morning, though he still gets really tired quickly.
We're seeing stamina very slowly increase, however. On Monday he couldn't hold his head up at all, but today he held his head up for about 20 seconds on his own when I was holding him up to sit up. He also has let me hold him up to sit for longer and longer periods of time.
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