People ask me, actually multiple times a day, how Job is doing and I never really know what to say. [I am so appreciative of these inquiries! It means so much to us that so many people care for Job!] But I never know how much information I should share. And ultimately the answer - at least so far - has never been "great!"
But Job is currently stable and still at home, so we are very, very grateful.
To have a whole month "off" (waiting for his March 7th surgery) feels amazingly luxurious. There are still many appointments each week and various other assessments/reviews and plenty of phone calls and emails keeping everyone in the loop... but the frantic "why can't he get off oxygen??" questions (and therefore lots of testing) have been answered. We're not waiting in the same way we were from October through January and it really does feel as if a burden has been lifted.
We're using this time to really work on Job's physical therapy goals and feeding goals. And we're trying desperately to avoid germs!
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