Wednesday, September 21, 2016

Wednesday Morning Update (9/21/26)

This morning Job was awake, looking at us and listening to us!!! For 15ish minutes! But it wore him out and he's back asleep now.

This means his delirium is largely gone and his sedation balance is being better managed (that sounds like an indictment of his team, but it's not! It's just a hard balance to find).

Job got a NG tube on Sunday and has intermittently taken feeds of 5mL/hour as he's been able to digest them. He's still on his D5 (basically sugars) drip but since things didn't go as expected and he's still sedated and ventilated he can't feed by bottle. And his team didn't want his digestive system to go any longer without being reintroduced to the concept of food. He hasn't always been able to digest the food (depending on how sedated he is) so he's gotten several breaks, but he's done pretty well. But he's NPO (no food by mouth) as of 6am because of his cath today.

He just got his daily x-ray and it showed improvement in his lungs, so we're headed in the right direction there. They need to expand and continue to dry out but should as time passes.

We'll likely spend the morning talking to his team and signing consents and then we get to wait (not anxiously?) for the several hours during his cath this afternoon. Just like during his last cath, we're so desperate for the results of the cath that it's easier to send him off to the cath lab than it might usually be.

We wanted his Glenn to go well! We didn't want to be in the situation, waiting and wondering, but it will be so good to get some answers today.

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