June 2018 Recap

Job did two days at Bible Day Camp at our church this week and felt so special and important as a big kid. It was so sweet to secretly watch him go around church with such a big smile on his face. Of course, when I took a picture he gives this scrunched up grimace.

This week I spent much of my mostly kid free time on the phone with doctors and transplant coordinators and have a few more answers now.

Job has passed every test or evaluation that we have done so far. We have two big days of evaluation coming up (July 23 and 25) where we will meet with numerous specialists and do more testing. This next month, until then, ought to be relatively uneventful.

The Transplant Selection Committee meets every Wednesday afternoon, so Job will probably be presented on August 1st and they will likely make a decision that day to approve or deny him for transplant. And then we ought to know within a few days after that.

If he is approved for transplant all that paperwork would happen immediately and he would be listed by mid August. MID AUGUST.

And then, once listed, we wait.

This is all happening so much more quickly than I ever dreamed it could or would. Job's heart is pretty sick and this is our remaining option, so they are trying to push him through quickly.