We're offering something off our plates at almost every meal, which is fun. He daily inhales 10+ ounces of fruit/vegetable purees and eats at least one scrambled or hardboiled egg, as well as various chopped up vegetables and beans. And he hit 18 pounds! Woo hoo! 22 lbs is my goal weight for him, since that's the minimum he needs to be for the Fontan. If (when) his tricupsid valve fails, I want him to be big enough to do surgery!
He's been taking several breaks off oxygen every day and today went 2 hours off oxygen before his sats dropped to 68. He's been satting in the high 80s while on .5 lpm, so I finally dropped him down to a .25 lpm for the night. He's sleeping with his pulse ox probe on his toe all night, so it will alarm if he drops below 75% oxygenation.
I've probably resisted dropping down on his O2 for too long, but it feels so weighty to go down to such a low amount of support. Even though probably been he's physically ready, I haven't been emotionally ready?
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