Wednesday, May 4, 2016

Wednesday Morning Update (5/4/16)


Yay, yay, yay! Job is off of a major heart medicine (milrinone) that was helping his heart squeeze enough to pump blood through his body, so that means his heart is strong enough to work by itself! This also means that he doesn't get any meds by IV anymore (just through his feeding tube).

He just has went up by 2 calories on the protein fortification in his feeds to meet his target goal and therefore has now met all of his non-respiratory goals!!

Today his team is trying to bring him down on the CPAP to a "7". (They haven't tried since Friday because of his infection and withdrawal and generally too much going on). Now that he is a little stronger and has a bit less going on we are hoping he can handle this attempt to wean off CPAP.


Job really likes being held, particularly at an upright angle, with his hands free of his blanket. When he gets agitated it usually works to let him grip my fingers until he calms him. And he loves his pacifier! He usually gets most agitated when he can't find his pacifier (especially when it's already in his mouth).

Today while I was holding him he pooped up the back of his diaper and leaked through his blanket onto me. I can't exactly say I *enjoyed* the experience or smell but it was one of those "normal baby" experiences that I am really grateful to have with him.

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