Wednesday Update (5/11/16)

For the last few days, Job had been on a "6" on the CPAP, but just today he was switched to the hi-flo nasal cannula. It's a different sort of respiratory support; not necessarily more or less supportive, just different. They seem to be wanting to find that right thing that is going to work for him and help him progress toward eventually breathing without any support. We're praying that his respiratory system gets stronger, little by little, day by day.

He is at his goal feeds (16 mL/hr), and they are even fortifying the breast milk so that he gets more calories. We're praying that he gets fatter.

Job is on a few medications, most notably milrenone (helps the squeeze of his heart). That is the only one he's getting via a drip thru his PICC line. The others (baby aspirin, lasix, and a couple others) are just a couple oral doses per day. They have attempted to wean him off milrenone a couple times, but his cardio and respiratory have performed better while on it. We're praying that he can function without it.

Autumn has been sick lately and consequently hasn't even seen Job since Friday, but she is getting closer to full health. We're praying that she can hold him again soon.

We are so thankful for the medical team at Seattle Children's. No matter what happens to Job, we'll always praise God for the amazing work they do. They work around the clock for him.

This quote from Spurgeon is often on my mind, and I think it applies to so much in life: "The Christian should work as if all depended on him, and pray as if it all depended on God."

We humbly declare that the God of Heaven and Earth is Sovereign over all, and our very lives - in health and sickness, in success and failure - are in His hands. Yet we make effort, and we rely on the efforts of those around us. We never say "Que sera, sera". On the contrary, we know that God uses our work.

-Seth