I got to hold Frightful for most of the evening today (after spending the weekend celebrating the marriage of my brother and new sister!) and comfort him through several fits of agitation. He desperately wants to be held as constantly as possible and wants to suck on his pacifier almost as much.
His infection is under the firm control of antibiotics and he's been able to tolerate an increased caloric intake (protein fortified breast milk) and is almost to his goal feed amount (4 more calories/mL to go)! He had to go back on a maintenance dose of the med he was having withdrawals from, but then, as of tonight, was able to ween off it again. He just needed a bit more time to get off it? All three of those things can be considered progress, but for the last three days they completely halted any attempts to ween him down on his CPAP because he was struggling so much.
His medical team has set a "firmer" deadline of mid week to see progress (off of his CPAP - a process that might begin again tomorrow... he's on an "8" and needs to get down to a "6" or even "5") before they start exploring why his progress has been so slow to this point (besides that whole major surgery/half a heart thing).
So, I'd sum up his weekend and goals for this week as "strength for today and bright hope for tomorrow".
Would you please pray for his weak respiratory system?
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