Tuesday, February 9, 2016

Update #2

We had a good appointment with Maternal Fetal Medicine today. So long! It focused more on this pregnancy than what is after this pregnancy (which is what I most want information about). I should have a really normal rest of the pregnancy. Everything looks good. As much as they can tell, his development is normal and on pace.

We have some genetic testing results we're waiting on which might help us determine his eligibility for the surgery (if he has trisomy 13 or 18 those are fatal and so they wouldn't do surgery then... babies with those often have heart defects, including HLHS, but just because he has HLHS doesn't mean he has those abnormalities). I have several more ultrasounds and echocardiograms - almost one a week - to continue to measure his growth and blood flow to better equip his surgeons to know what to expect.

I do get to continue to have my midwife do my regular appointments as co-care and do the delivery at the hospital but her consulting OB and a high-risk OB will be on hand at delivery just in case. Yay!! It is exciting to me to have the personal attention of the person who has been overseeing my prenatal care (rather than one of the 13 OBS on staff who might be on call) and could make for fewer interventions. It feels less intimidating, at least. But we will of course be at the hospital and there will be plenty of monitoring going on to insure he is being well cared for throughout delivery.

As we learn more about this condition the more we're considering requesting his surgery be performed at Seattle Children's (instead of at Mary Bridge, even though it would be one of the same surgeons) because of the cardiac NICU there. This would be more inconvenient geographically than the Mary Bridge NICU, but it could be important. If we do ask for a transfer to SCH that would happen the day he is born in a hospital-to-hospital transfer.

I should be able to schedule my induction in the next few days but we're looking at about March 28th. The week following will probably be the most intense week of this journey as doctors will be determining his eligibility for surgery and the surgery itself is precarious. We meet with our pediatric cardiologist again on the 18th and hopefully will make a lot of the plans for this first (potential) surgery then.

Seth and I both are feeling very much at peace right now. There is absolutely nothing we can do right now except to continue to trust and pray. I feel great physically - third trimester energy? I know the delivery will be intimidating because it will make his surgery imminent and the week afterword will be very intense but we're doing ok right now. We're feeling so loved by our family and friends and church family and can just rest here for a while.

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