Update! (8/29/16)

Job had a good weekend - much less fussy and ate better. Perhaps it didn't mean anything to begin with, but attitude changes and digestive issues are such big red flags for heart kids that I'm feeling relieved to see him back to "his old self" a bit more.

His doctors continue to talk to each other and to us about the aortic arch repair. I didn't realize this, but Job IS on the schedule as a Glenn + arch repair. Though it's possible this could change, it just feels significant to have it scheduled as such.



He has a two hour echo scheduled for pre-op (9/13) and if this echo shows that his arch function is better than we expect, Job could get out of the arch repair. Increasingly, however, it seems as if the growing consensus is that Job would probably eventually need the arch repair (in a year or two, so before the Fontan) and because he doesn't have vascular access for a cath in either leg, this would mean an additional open heart surgery. Therefore, even though he doesn't need it yet, they want to do the arch repair while his chest is already open.